熱門

X

    #Hashtag Hong Kong

    簡介

    GIST

    Listen to #Hashtag Hong Kong every Sunday morning at 8.15

    Focussing on issues affecting civil society, we'll hear from representatives of NGOs, associations, statutory bodies, and non-profit groups.

    (Sundays 8.15am - 8.25am)



    最新

    LATEST
    Shirley Yeung, the Integrated Community Centre for Mental Wellness, ICCMW
    29/12/2024
    相片集
    相片集

    Shirley Yeung, the Integrated Community Centre for Mental Wellness, ICCMW

    Hello to the RTHK audience, I am Shirley Yeung Sui-lng. I have schizophrenia, which I have been living with for almost 25 years. I want to share the difficulties that patients face when thinking about recovery. Will I ever get completely better? Does continuing with medication mean I have not recovered? Is relapse a possibility? Is my mind different from others? Can I understand mental illness purely from a psychological perspective? My answers to these questions are positive. Recovery means achieving certain goals at various points in your life. In my childhood, I had a wonderful time living with my parents, brothers, and sister. We shared a close family relationship. Fortunately, I had the opportunity to attend school until I graduated from university. My mental illness began around the age of 24, in 1998. I experienced headaches and felt a lot of stress. I didn’t have many friends to share my feelings with. I became confused, believing that the advertisements on TV had special meanings. I felt as though secret police were monitoring me, and I was scared whenever I saw red lights or the color red, like on taxis. During that time, I felt deflated, had low self-esteem, and was sad, even refusing to take my medication. I was diagnosed with schizophrenia and eventually needed to be hospitalised at Kwai Chung Hospital. However, throughout my 25 years on the recovery journey, doctors, nurses, cross-professional caregivers, clinical psychologists, social workers, and peers have helped and encouraged me to grow. First, finding the right medications requires time and careful attention from clinical professionals. Some people worry about weight gain and stigma from the side effects of medications, which can lead them to quit taking them. From my experience, it is important to communicate your concerns and problems to the clinical teams. Trust and communication between professionals and patients are crucial. I regret that my insight into my illness was poor during its onset; I wasted valuable time in my youth. Fortunately, with the support of my family, medical team, and social workers, I learned how to cope with the illness and move toward recovery. I take my medications on time every day and continue to learn by attending educational classes, conferences, and reading to strengthen my coping skills. I have gained the self-confidence to face this serious mental illness, building my life like a puzzle that forms a clear picture with the help of various sources. What does recovery mean? Recovery means hope, building strength, advocacy, and peer support. You can be a unique individual and lead a meaningful life. Now, I actively share my story, knowledge, and lived experiences to contribute to society. I participate in self-help groups such as the Concord Mutual-Aid Club Alliance, where I share and listen to peers to overcome illness together . The theme of the Concord Mutual-Aid Club Alliance is 1.To promote and develop mutual help among the Alliance members. 2. To enhance the rehabilitation, rights and quality of life of its members3 To actively participate in events and issues concerning the rights of the mentally ill person. From my experience of taking anti Psychiatric drugs, we suggest Hospital Authority to increase more choices of new and efficiency medicines for patients. We also share our recovery story to reduce stigma and promote mental health to the public. I engage in advocacy work to voice our difficulties and rights to the government, legislative council, Hospital Authority, and the public. I would like to say that you are not alone to facing mental health. You can ask for help from our peers, professional support and family care. Last but not least, I hope you take care of your mental health. If you have any concerns, please don’t hesitate to ask for help from us, ICCMW, doctors, or others. I choose the song "Imagine" by John Lennon. We are all the same and without boundaries. Thank you.

    29/12/2024 - 足本 Full (HKT 08:15 - 08:30)

    29/12/2024 - Shirley Yeung, the Integrated Community Centre for Mental Wellness, ICCMW

    重溫

    CATCHUP
    10 - 12
    2024
    香港電台第三台

    29/12/2024

    Shirley Yeung, the Integrated Community Centre for Mental Wellness, ICCMW

    22/12/2024

    Gabrielle Kirstein, Founder, Feeding Hong Kong

    15/12/2024

    Cindy Ng, Senior manager, Program and Services of KELY Support Group

    08/12/2024

    Dr. Patrick Cheung, Chairperson, Against Child Abuse

    01/12/2024

    Lok Man Leung, Program Manager from Hong Kong Aids Foundation

    24/11/2024

    Amanda Fok, the founder of Let’s talk ADHD

    17/11/2024

    Korver Li, ComHome Social Housing Platform Limited

    10/11/2024

    Joanna Hotung, Chairperson Emeritus, Youth Diabetes Action

    03/11/2024

    Wong Shek Hung, Director of Hong Kong, Macau and Taiwan Programme, Oxfam Hong Kong

    27/10/2024

    Dr. Yvonne Tsang, Member of Advisory Council, Hong Kong Breast Cancer Foundation
    X

    Professor Edwin Chan, Amyotrophic Lateral Sclerosis (ALS) researcher from CUHK

     
    My name is Edwin Ho Yin CHAN, and I am a professor and an amyotrophic lateral sclerosis (ALS) researcher in the School of Life Sciences at The Chinese University of Hong Kong. Since 1999, I have been dedicated to researching the pathobiology of rare neurological disorders that affect the nervous system. My ultimate goal is to translate my basic research into therapeutic treatments for these devastating diseases.
     
    Amyotrophic lateral sclerosis affects the nerve cells responsible for voluntary muscle movements such as walking and talking. These nerve cells, known as motor neurons, can be divided into two groups. The upper motor neurons extend from the brain to the spinal cord, while the lower motor neurons extend from the spinal cord to the muscles. ALS gradually deteriorates and kills both groups of motor neurons, leading to a loss of muscle function.
     
    While the cause of ALS is unknown for the majority of cases, about 10% of individuals with ALS have a genetic cause that can be identified. How does ALS impact daily life? ALS has a significant impact on mobility, breathing, communication, and mental well-being. These symptoms progressively worsen over time. Muscle weakness is a common manifestation of ALS, particularly in the limbs. This weakness, primarily affecting the arms and legs, can hinder mobility and coordination. Initially, the distal muscles, such as those in the hands, feet, calves, and forearms, are typically affected. Upper limb weakness can make tasks like writing difficult, while lower limb weakness often impairs walking. Breathing difficulties are common in individuals with ALS due to weakness in the chest and diaphragm muscles, leading to chronic respiratory failure. This weakness in the respiratory system can result in breathing problems and frequent lung infections. Eventually, some individuals may require a ventilator to assist with breathing. Cognitive decline is another aspect of ALS, with approximately half of patients experiencing brain-related and behavioral changes at some point. Frontotemporal decline, a form of dementia, also affects some individuals with ALS.
    In summary, ALS significantly impacts daily life by affecting mobility, breathing, communication, and mental health. Managing these symptoms requires various strategies and interventions to maintain overall well-being and independence for as long as possible.
    To find out more about the disease biology of ALS, we have specifically studied a genetic mutation that is responsible for 35% of all ALS cases complicated with frontotemporal dementia, and have found a new direction for therapeutic development. Through our experiments on various research models with the University of Oxford, we discovered that a cellular factor becomes dysfunctional in the spinal motor neurons of ALS patients. This dysfunction affects the ability of these neurons to form connections (synapses) with each other, which is crucial for proper communication between nerve cells in the brain. This disruption of synapse formation contributes to the neuronal defects and muscle weakness observed in ALS.
     
    In addition to studying the basic pathobiology of ALS, we are also developing a group of biological drugs called "the BIND peptides" that aim to slow down the progression of the disease. The affinity of BIND peptides to their drug target has now been enhanced by 1,000 times and we are hoping to start clinical trials on this drug next.
     
    I would like to share a song called "Fight Song" by Rachel Platten. In an interview, Platten mentioned that she wrote this song with determination and a refusal to give up on herself. This song has inspired millions of people, including people suffering from ALS and some of them were featured in a recent ALS documentary film called “No Ordinary Campaign”. It is remarkable how something so personal and resonant can have a universal meaning. We all have the potential to be inspirational, but sometimes it just takes courage to express it. Whether it is through a song, research, or a random act of kindness, when combined, our efforts can fill the world with love and care.

    香港電台第三台

    18/02/2024 - 足本 Full (HKT 08:15 - 08:30)

    18/02/2024 - Professor Edwin Chan, Amyotrophic Lateral Sclerosis (ALS) researcher from CUHK